Vice President Research & Medical Programs
About Tourette Association of America: The mission of the Tourette Association of America is to improve the lives of all people affected by Tourette and Tic Disorders, through increased awareness, support, advocacy, and research
Reports to: President & CEO
Job Description: The Vice President leads the Association’s Research and Medical Programs Department, as well as provides support to the President & CEO of the Association. This individual is responsible for all programs, activities and staff within the Research and Medical Programs Department, which endeavors to advance the understanding of Tourette & Tic Disorders, facilitate the development of effective therapies for these disorders and raise awareness through the execution of public health and education initiatives.
Research and Medical Programs
- Develop and manage the Department's budgets.
- Guide the publication, presentation and dissemination of medical, scientific and other information related TS and Tic Disorders.
- Respond to enquiries from the public, professionals, members, etc. on medical and scientific issues relating to TS/Tic Disorders.
- Manage and provide direction to the Program Associate, Information and Referral Coordinator, Director for Education and Outreach and other staff of the Department.
- Oversee all established, developing and ad hoc research and medical projects/activities including population database management and prevalence data.
- Conceptualize and develop new projects independently and/or in collaboration with the Board of Directors, President, Staff, and external organizations and advisors, including the TAA Medical Advisory Board, Scientific Advisory Board and TAA Centers of Excellence.
- Liaise with our Medical Advisory Board and Scientific Advisory Board and develop relationships with pharmaceutical and medical devices companies, governmental institutions (e.g., NIH, CDC, FDA), academic and medical centers, etc.
- Foster collaborations and consensus among researchers from different disciplines in the US and abroad.
- Promote evidence-based, best practice, treatments across the spectrum of care providers in the US.
- Help to attract and facilitate the education/ training of junior faculty in Tourette and Tic Disorders treatment and research
- Work with the scientific consortia within the Association to promote transformative and collaborative research in the fields of behavior therapies, genetics, neuroimaging, histopathology, clinical trials, and others.
- Manage the Association’s care provider lists, and other internal/external databases and registries.
- Manage the Association's grants and other resources (e.g. brain samples).
TAA Cooperative Partnership with the Center for Disease Control (TAA-CDC) Program
- Provide strategic leadership to implement, evaluate and enhance the TAA-CDC program.
- Oversee the execution of the program to meet all aims and objectives as set forth in the grant proposal.
- Develop evaluation strategies to report outcome, reach and impact of the program.
- Manage the integration of the CDC partnership with other TAA programs and departments, as well as interfacing with external partnering institutions and individuals.·
- Guide and supervise members of the CDC team.
This position requires experience in developing and leading research or medical programs in the fields of public health or neurology, psychiatry, or neuroscience. Background in leadership, mentorship and networking skills are required. Background in clinical research is a plus. Masters level degree required; MD or PhD preferred. Personal or professional experience with Tourette Syndrome, tic disorders, or closely related disorder is also a plus.
Some travel as well as evening and weekend commitments are required.
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